Date: Tuesday, March 10 th 2026 
Time: 10:00 – 16:00 
Location: at the Sorell Hotel Ador, Laupenstrasse 15, 3001 Bern 
Agenda: 
10:00 – 10:15 Welcome 
10:15 – 10:45 Case Presentation 
PD Dr. med. Jeroen Goede 

10:45 – 11:15 Case Presentation 
 PD Dr. med. Jeroen Goede 

11:15 – 11:45 Discussion 
of the Helsana response of our physician statement 

11:45 - 13:00 Lunch break 

13:00 – 13:30 Update RBCR Register 
Dr. med. Nadia Dietliker, Universitäts Spital Zürich 

13:30 – 14:00 Discussion about publication on the effects of HbF-inducing gene therapy on future 
Pregnancies (see attached document) 
Dr. med. Mathilde Gavillet-Marion, CHUV Lausanne 

14:00 – 16:00 Case Presentations and Discussions about the next steps