Date: Tuesday 25th November 2025 
Time: 17:00 – 18:30  
Location: virtual 
Zoom Meeting 
 

Agenda: 

Case presentation: Iron refractory iron deficiency anemia 
Dr. med. Michael Amrein and Prof. Markus Schmugge, Universitäts-Kinderspital Zürich 

Case presentation: Hereditary stomatocytosis with homozygous mutation for ABCG5 
Dr. med. Thomas Lehmann, Kantonsspital St. Gallen 

Update on the clinician statement to support the gene therapy access for patients with hemoglobinopathies 
Dr. med. Mathilde Gavillet, CHUV and PD Dr. med. Jeroen Goede, Kantonsspital Winterthur¨ 

Planning of the next meetings 
All